Description of the video:
Well, good evening. The Indiana University School of Public Health, Bloomington and the Role Center for aids and STD prevention. Warmly welcome you to tonight's event of the Ryan White Distinguished Leadership Award and the Ryan White William Lee Arbor lecture is my pleasure now to group present to you, Dr. William L. Yarborough, who is the Senior Director and Founder of the Role Center for aids and STD prevention. A provost professor here at the IE School of Public Health. Dr. Jaeger. Thank you, Brandon, you introduced me. I was going to say LOL, I'm Bill Yarborough, Senior Director of the Center for aids, STD prevention and Provost professor. That you said that. So thank you. Aware here this evening who gathered to honor Dr. Anthony S. Foul foul cheat with the 14th Ryan White Distinguished Leadership Award. And what together? We have we have over one hundred, eleven hundred registrants for this event. And so we're pleased that people feel that this is important. Dr. Falcon, you will be joining us at six o'clock this evening. And he and I will chat about his career until 630. As you can imagine, he has a full schedule that even got more full with the emergence of the AMR cron variant. And if you ever watch any of the news, particularly Evening News, You know what I mean? And so a week ago or yesterday, I got a text from his office saying that we hope to be able to honor him a bearing and this event, but things right now are uncertain. So that made a good evening of sleep for me on Sunday evening, but then why woke up on Monday morning? I got a text from them saying that things are ago. And so that was really a great news. And yes, we would like to have more time with him. Yet we realize that even with the demand for his time at this particular moment, he chose to be here tonight. And to me, that illustrates is respect and admiration for Ryan White. So we're most, most fortunate to be able to honor Dr. Fouchier. Denied. Among the other dignitaries present is GD white in there, Ryan's mother, who will present the award to Doctor of algae and will share her experiences. And being Ryan's mother was grateful or GT, or being part of Indiana University and a real Center for aids, STD prevention. And part of this sell inventory. And remember it's event tonight, particularly given that if Ryan was among us today, he would be celebrating his 50th birthday. Now I am delighted to introduce a message sent to us by Interim Provost John as Applegate. Interim Provost Applegate is the Chief Academic Officer of IU Bloomington, and as responsible for almost all facets of the campus operations. He has served as a senior leadership roles at IU since 2007. He's the James Lewis Keller marriage professor of law at the IU Mauer School of Law. This watch the video. Good evening. I'm John Applegate, interim provost of the Indiana University Bloomington campus. And it has a great honor to offer a few words of welcome at the 2021 presentation of the Ryan White Distinguished Leadership Award. Throughout his outstanding and distinguished career, Dr. Anthony Fauci has changed lives through research, better treatments, and as we have all witnessed over the last year and a half, public education, Indiana University fully espouses these pursuits as well. We call them teaching, research and public service. And we to see in them a guiding mission to make the world a better place for people everywhere. Public education, of course, is important in the best of times, as it lays a foundation that enables us to face difficulties. This they are rocks. It is absolutely critical during national and international emergencies. At these times, people urgently need to know how to adjust their behaviors and how to intellectually frame what is occurring. It is also a time to speak truth to power. Dr. Fouchier through his work on the COVID-19 pandemic and is leading work on the HIV and aids pandemic has courageously provided us with context, knowledge, and candor at each step of the way. In a Time Magazine video last year, Dr. Fouchier commented that people are craving clarity, honesty, and the courage to stick up for what's right. He added, we always used to say pandemics occur. They have always occurred and they will occur. And it would be really shameful if we don't learn from what we've been through. This is precisely what we aim to do at Indiana University. Observe new occurrences on Earth patterns, analyze findings, and push entire fields forward through the strict standards set by the scientific method. We aim always to support robust inquiry and to nurture open discussion. The award Dr. Fouchier's receiving tonight is a very special one. We all hold Ryan White Deer in our memories as someone who uniquely brought tremendous compassion. Conversations about HIV and aids in our country. We are honored to have Ryan's mother, Jeannie White, Kinder, with us tonight, and we welcome her as well. Before I conclude, I would like to thank the Rural Center for aids and STD prevention and the Ryan White and William hello Yarborough lecture series for bringing us tonight's conversation. We're immensely grateful to Dr. Bill Garber for establishing this award and for his efforts to bring Dr. Fouchier to be with us tonight. We are grateful also to the IU School of Public Health Bloomington. Thank you all and enjoy the remainder of the program. Thank you, bro, most predict for loops, comments. I'm pleased now to present David Allison, Dean of the School of Public Health Bloomington. Dean Allison is an internationally renowned scientist, also a distinguished professor and Provost professor. During his tenure as dean in our school has become among the top 50 schools of public health in the country. We appreciate his wisdom and the organizing of this event, particularly the suggestion of an original poem about foul that will be shown later in this program. And it's also in the program that you received. Thank you, Alison, for your support of this event. Thank you, professor Ya over Yd is truly a privilege to be here tonight. One regularly says it is a pleasure to be here tonight is a privilege to be here tonight. There's a pleasure and privilege and an honor to introduce our speakers. And when I say those words, I always mean, but never do I mean the more that I mean the night, it is a privilege to be here to stand among giant, giant like Billy Arbor and a giant like Dr. Anthony Fauci who will be joining a suit on and tip my hat to build. Professor Yoder is troublemaker in the very best sense, the word, he is a rebel with a cause. Not a rebel Without a Cause. He is somebody who has contributed to the well-being of others in and outside of our university, who was donated his own personal funds to help establish this work, to establish a professorship who has donated his time and his accurate to pursuing truth. Who has questioned others politely. Like a gentlemen, like a scholar, a question. That's a rebel with the pons. That scholarship at its best. The challenge in the pursuit of light and truth is sealed behind me. You see the word logs. That's part of our University's motto. Lucky. He worried us, light and truth. That is the Latin for light and truth, the motto of our university. It is what we pursue. It is not what we achieve in any one day. It may never be what we achieve in our lifetime is something to which we aspire. But what we achieve is holding ourselves uncompromising to that aspiration, to that proceed to that path. We may sometimes stumble. We may sometimes make mistakes. I stumble and make mistakes. Professor Yarborough may stumble and make mistakes. Even Dr. Fouchier may have stumbled and made a mistake. But what he has not done is ever deviated from the quest to stay on that path. That path of light and truth, lux, a worry to us. In our school, we say it's about knowing. If you look at the background behind Dr. Brandon, how on this tall, you will see our schools while it's about knowing Lux he wearing cost the pursuit of truth. Tonight we are going to honor Dr. Anthony tau G, a stalwart protector of science and truth. We here are the School of Public Health Bloomington as our school focused on science, focused on knowing, on making a difference in the world through light and truth, through evidence, through science, through knowing because conjecture was good. But knowing his back. We are committed to helping others for both the power of knowledge and for the enjoyment of discovery. We are always in pursuit of that truth. Luck. See where he tossed the tie I'm wearing, which I am suspecting that most of you will not be able to see, but I will hold it up anyway, is to show you that I'm all in. This is not a part-time proceed as a full-time pursuit. And my Ty says, Lux, he where he tossed. It says it contains the Hebrew word, the Hebrew letters. And that, which means truth, which is a word placed on the forehead of the Golomb to activate the Golomb to protect his people and women. Dom has activated with the Hebrew word amen. He cannot be stuff. And the only way to stop it is to cross out one of the Hebrew letters so that the word I met becomes met, which means that that is the only way to stop a gown. When he's consumed by truth, he's unstoppable. So we are unstoppable. We are in the fatigable. We are uncompromising in our pursuit of truth. That's what they'll yogurt has instantiated in tonight. And what we are pleased to honor Dr. Fouchier with tonight. You know, Franklin Delano Roosevelt's, another great man. Once said, I asked you to judge me by the enemies I have made. And I know that my friend Billy arbors made nanometer tune goods, UEBA, that I've made an enemy or three, good for me. And I know that Dr. Anthony Fauci has made a few enemies and good for him. When we first announced this event, I received a great deal of email. Most of it was wonderful. Most of it was praising us. One or two items might not have been quite so friendly and warm and wonderful. And one that I got was not for months, no man, but I didn't or I did not know what who asked me if I'd seen some of the things about Dr. Fouchier said, if I've seen these things and we're still going ahead with this meeting. I was a terrible person. I needed to stepped down as dean. I was probably in cahoots with Dr. Faltys and I will be sharing a jail cell with Dr. Fouchier soon, to which I would say I'm very grateful for that because I could imagine that I would learn a great deal sharing a jail cell with Dr. Fouchier is a gentleman and I would sure I would enjoy it, but I would also find it a very good time to learn. If I have to share jail cell with anyone, I can't think of anybody better than 20 Saatchi. So I tip my had to Tony cheap. I might have to Billy Arbor. I tip my hat to Brandon and Amy and Holly. We've put this meeting together. I tip my hat to Jeannie White hinder, and of course to Ryan White's their courage and bravery. It's showing us the courage and bravery are as important values as our commitment to truth and light. And lastly, I will say, thank you to all of you for joining us tonight. It truly is, my honor to be here with you. Thank you. Allison, Ryan White. All that. He wanted to be a typical kid. Having a car, hanging out with his buddies. He wanted his life to be normal, the Fed and have fun and be treated just like other kids. However, his life became anything but normal. When at age 13, he was diagnosed with HIV, contracted through painted blood products that was given for his hemophilia. The diagnosis came at the height of that fear and ignorance surrounding HIV aids. Later he was diagnosed with aids, a disease that few, including the medical community. Understood. Ryan was determined to go to school, yet he was banned from school in COCOMO, Indiana. Despite I'll ensure services from the CDC and the Indiana State Department of Health that he posed no risk to other students. He was spat on, called names and shunned by his classmates and his teachers. Ryan spent to seventh grade at home taking classes over the phone while he's classmate sat in a classroom. Brian says, I was labeled as a troublemaker, my mother as an unfit mother was not welcome anywhere. Ryan and his family went to court fighting not only the angry, fearful school district, that many people in a community. Though Ryan won a court case, his own fight, and just begun. For example, when he was permitted to return to school, nearly 1.5 of the students stayed at home. On one, on more than one occasion. A bullet was fired into the white. In 1987 and family moved to Cicero, Indiana, where he was accepted with open arms at Hamilton Heights High School. Ryan's fight to lead a normal life thrust him and gt into the media spotlight. And during his five year fight to continue to live after being diagnosed with aids, Ryan spoke out against the misconceptions about the disease and call for persons with aids to be treated with compassion. He testified before the President's Commission on aids. And much to his chagrin, riot, a modest and somewhat shy boy, became a celebrity. Ryan faced great difficulties that taught all of us that one person can make a difference. This determination and Degas to encourage great admiration and support around the world. Ryan are Native Son, put a face on the aids epidemic and change the way the world dealt with a devastating disease. Only a few months after his death, his legacy was submitted into the wall. The Ryan White Comprehensive aids Resources Emergency Act of 990, which provides grants to improve the quality and availability of care for individuals and families affected by HIV. One of the many memories of Ryan that Judy has shared, one particularly has stayed with me. Janey, recall that when they left their house, Ryan noticed that her face low. Ryan said with these hand uplifting her jaw. Mother, keep your head high. We have nothing to be ashamed of. Ryan died of aids April 8, 990 at the age of 18 at Riley Hospital in Indianapolis. The sprain before he plan to attend college here at Indiana University. Today would've been Ryan's 50th birthday. Senator Kennedy, set of Ryan. Or an awakening health crisis that could not be ignored. We thank Ryan. Are showing that the battle against aids and not as a guest aids and not against people with aids. We thank Ryan and most of all for helping us to be a more humane and just society, for helping us to reach out to those in need and for helping America be America. We think Ryan White, JD says her memories of her son and their struggles remain fresh in her mind. She says is still therapeutic for her to talk about her son's life. And there are 31 Year sense Ryan died. Genie has remained an advocate for the HIV aids community. And to this day. And he takes her story on the road, inspiring people by sharing Ryan's messages and her story as another, as you will hear tonight. As you will hear awesomer genies words touched the heart of those who will listen. Cheating. We are proud of you and thankful for what you have done and continue to do to carry on Ryan's legacy. Following Genie's presentation, we will view a video of Ryan and then have a moment of silence in memory of Ryan and others who have died of aids. Welcome, Judy, and we look forward to hearing your comments. Your reflections of being the mother, Brian, one, that disease called aids, my life changed overnight. It was not anything I thought I was going to have to worry about. But in 980 for Ryan was diagnosed with a t, was one of the first children and first hemophiliacs to come down with aids. It was a new disease. It was fatal. Very little information on the disease. And so we stall the panic. People believing that maybe kissing tears, sweat and saliva might spread Aedes, mosquitoes and please my transmit aids and people panic. People were very, very scared because it was such a fatal disease. Disease. It was really kind of rough at the very beginning, especially because of all the misconceptions and people being scared. Well, Ryan, he was only supposed to live three to six months to live 5.5 years. So I'm very happy now that we went and thought that bite that we did, that. At same time, I was just trying to keep Ryan alive and looking to the future. It was something that I use. I didn't want him to sit around and think and, you know, am I going to get when am I going to get sick and die? So as a mom, I just wanted him to have hope. I wanted to miracles and cures or something. I. Like somehow some way he's going to beat this though to fight to go to school. He kept bugging me, go on to school and I thought, oh, I don't know, you know, that he kept saying Mom, I want to go back to school and I wanted to keep give him that hope, that hope that, you know, that he's going to live, relay. And the schools kept saying No, they had a school superintendent meeting in. School board announced that they were not going to let him back in school. And that's when it broke over the media. It was all over the place and I said, You know, I'm a let you talk to him. And so Ryan got on the phone with Mr. Bon and Mr. Ron said Ryan White, Do you really want to go to school that Matt and Ryan said Yes. He said it could get ugly. Ryan said I can take it. He said Ryan White, if you really want to go to school that bad, I'm going to get you there. Well, we thought it would take one court hearing. We had all these medical experts on our side, but local doctors testified that they wouldn't let their kids go to school with Ryan and they wouldn't treat Ryan if he'd been a patient or there's so we definitely saw right off the bat how the medical community was very much disarray on what they wanted to put their name too. Ryan said, Yeah, you know, everybody wants to 100% guarantee. See said, You know what? Mom, there is no 100% guarantees in life. But that's when the media circus began. But Ryan start educating people and Mom, I just tagged along. I mean, I, uh, he did so well. I I was just worried to death. Me. I really was I was scare. These these people are just trying to protect their own kids. Like you're trying to protect me. He said If you don't know about set mom, you won't be afraid of it. That's why we have to continue to educate. I think Ryan became a media person, a person an immediate, mostly because of his smile. The media loved Ryan. They saw he had no other motives but just to try to go to school and try to educate people. It was so funny because I I told Dr. Ryan, I said Ryan, I said what about all these people that are saying all these bad things? And he said, You know, mom, once you get aids and she's just trying to use his hemophilia as a way to say how he really got it and said he's done something bad or wrong or he wouldn't have. This is God's punishment for people who do bad things. And so we heard all these remarks and as a mom, I tell you it really it was horrible. It was horrible. And you have your family, Sam, you know what they said about you today. And so to be in the media and such hateful words and see people do, will do anything to, to prove themselves right, whether it's right or wrong. I mean, I think that was the hardest thing as a mom to see the herd. And I think Ryan took it better than I did. And like he like Bill said, I mean, he was always say in mountain, keep your chin up. You have nothing to be ashamed of. I know Ryan, I know, but you know, just see the trauma, turmoil, but also to see the rewards of people Edge me an educated about aids and finally moving to Cicero, it to Indiana where the kids got behind Ryan and the girl three doors down who was distinguish Leadership Award winner to Jove Waymo. You know, she went to school and how kids can make a difference. So, so much about she said, Let's make Ryan White welcome here, Let's get educated. And so they did this mass education. Ryan went to problems, he went to dances. I mean, it would to see how the difference between whether the parents who've got the wrong information and in COCOMO and told the kids and and the bad information. And then just come and see you can to get off at the right information. And they educated themselves and they can't went home and educated their parents. So I think in that in itself has, it shows that people can make a difference if you listen to the facts and listen to the science. And they can make a difference in everybody's lives to, by knowing the truth and getting their truth with the Ryan White Care Act. It was the same thing. I mean, I worked a lot with the gay community. And I tell you, once you see people going through the same thing that you are, you just, you, do, you want to help everybody you want to, you? That is some philosophy I think that everybody needs to do is to be a, b me and want to help everybody else. Because we're all in this together. I mean, you know, the fight is a fight to and we're, but we have to listen to the science and the truth. People say, how can I do this? After losing my son? Losing a child is the worst pain any mother could ever go through. And I it doesn't get easier but you learn to live with it because you have to. I need to celebrate my son's birthday still he's still alive within me. I will always be my son. Had a very front row seat to prejudice heavens, you very much So. Tell me something about. In my case, it was fair. And just because, you know, I for I suppose, but he had something in my by that nobody else had or very few people add. And I think I just because you're different. I mean, I'm surprised you're really have dogs nowadays because they're different. It's amazing how you can accept a dog in your house, but you can't accept someone because of their race, their color, or their religion for what they have in them. And I could comment, post MI means like a rainbow. One. Like this. Yes. This is one thing we just cite today. It's such a privilege, I think, to honor Dr. bow shade because I'd been involved with aids are very, very long time. And he's better life support, I think for people with aids. And I guess it's my greatest honor, relate to be able to give him the Ryan White Distinguished Leadership Award along with you. And just thank you so much for all you've done for everybody. You know, the fight continues and the science continues. I thank you for those comments. They were touching and they also help us understand what it's like to be a mother that he says These kinds of kinds of circumstances. So thank you, Jamie, for all of your comments and for all that you do. As I said, Ryan White has one person made a difference nationally and internationally. Now, fitting that is tonight that we are honoring another individual, Dr. Anthony yes. Fouchier, who has and is doing the same because of his stand fast and unparalleled commitment to the value a necessity of science and truth. The health of the country and the world has improved and millions of lives have been saved. As Director of the Federal National Institute of Allergy and Infectious Diseases. Since 1983, he has bad a public health advisor to seven presidents whom he earned the respect of both Democrats and Republicans. Dr. Fauci has been and admired federal leader on HIV aids and other epidemics, such as sars, Ebola, and Zika. Now, he stands at the leading edge of the COVID-19. Pandemic. Has had a prominent role as a scientist, physician, administrator, and as a skilled public health educator. Dr. Fouchier, that he first became publicly known during the beginning of the aids epidemic. Is leadership and scientific studies greatly expanded aids research, treatment and educational programs. And he is one of the most prolific researchers worldwide. For example, he is right, ranked 32nd most cited living researcher. And 20th out of 2.4 million authors in research experimental medicine. He has been awarded the prestigious Medal of Freedom, the Presidential Medal of Freedom, and was named among the 100 most influential persons of 2020 by Time Magazine. So we'd like to welcome Dr. Fouchier to to our program this evening and thank you Dr. Fouchier for being here. We know that your schedule is very demanding at this time and we're pleased and honored to present to you the night the Ryan White Distinguished Leadership Award. Before we present that, you and I will have a chat about some of your components of your long illustrious career as a public health servant and a scientist. So I would like to start our conversation. When you've been a public health servant at the National Institutes of Allergy and Infectious disease for a long time, 37 years, right? And so there's gotta be a good story of how you got started. I mean, how did you choose to become both a scientist and a public servant to somebody always dreamed about or something happened in medical school or, you know what, loosely beginning. Well, thank you very much, Dr. Robin. The beginning was really actually my intense desire to be a physician and to take care of individual patients, which is really the driving force of everything have done from the very beginning. It was only after I got to the NIH for my infectious diseases fellowship, which was a combined fellowship in infectious diseases and clinical immunology. That I get very interested in science and clinical investigation and clinical research. And really my career was really completely transformed. In the summer of 1981 when I became aware of the first group of five young gay men who came up with this unusual and unprecedented disease, which a month later, another 26 gay men from Los Angeles, San Francisco, and New York City were identified with a bizarre disease characterized by immune suppression. That was the thing that changed my life because I decided that as successful as my career had been up until that point, I was convinced this was a brand new disease. Since I was trained in both infectious diseases and immunology. And this appeared to be an infectious disease. We didn't know the etiology. It didn't even have a name at that point nor an etiology. But that's when I devoted all of my attention at all of my energies to studying this strange new disease. And I've actually been doing that for the past 40 years because that was in the summer of 1981. And we're now 40 years in a few months past that. So that's how I got started. I didn't plan it that way. Circumstances through themselves in front of me, that really changed the course of what I was doing. Some of it actually did change the trajectory of your career? Absolutely. I was going in a different direction. I was studying the relationship between immune suppression of chemotherapy and susceptibility to infectious diseases. Particularly in people with autoimmune diseases who have been treating with corticosteroids and cytotoxic agents. And that's how I got interested in the relationship between immune suppression and infectious diseases. And so HIV came along, was almost as if I had been trained all of my professional career to study it and that's what I did. So I suspect but when you look back. That was a pivotal moment. The probability you have so many experiences and so many feelings about that. That's something that ends up being a major component of the word dog your whole professional career? It is. Is that particular MMWR report that came out on June the fifth, 1981, followed by a second one on July 3rd, 1981. It was the second one then really convinced me. I thought the first one was a fluke. I thought it was just a one-off that we would never see again. And then when I had 26 men with the same sing, I said, wow, this is a new disease and that's when I decided I would have to study it. What's interesting? You mentioned that on a personal note on that I was happened to have a CDC contract to write a curriculum about STDs. And I can remember traveling in my car hearing that report, talking about report which I called my project offers CDC and said Are you can put in a paragraph. We don't think this'll mouth too much though, right? Yeah. And then after the second one had a different idea so things don't change. So where are you? The agency prepared for something like this? You know, as, as the National Institute of Allergy and Infectious Diseases. This happened in 1981. Bill and I became director in 1984 in member. And the Institute was not really one of the upfront institutes among the NIH. It was kind of a sleepy Institute in the good sense, but not really up there. We were about seventh and size of the NIH institutes. And one of the reasons I became director and accepted the job is that I didn't think we were prepared enough for emerging infectious diseases. There was not enough attention paid to HIV. And HIV dominated all of my clinical and research activities. I had spent, you know, most of several years personally taking care of persons with HIV at the same time as my lab and I were doing research to delineate the pathogenic mechanisms. So when the opportunity came at a very young age for me to be the director of NIH AID, I accepted it with the sole purpose of expanding our work on HIV, but also expanding our capability to address all infectious diseases, including malaria, tuberculosis, and all the other diseases. Then the actual course throughout your career, I mean, you've been not only HIV and Ebola and Zika, sars and all these others type of infections. And so he's now of course go. And so it was very interesting. We didn't pay much attention to the concept of the transforming emerging infections. And then when HIV came along, it just completely blew that apart. And then since then, we've had pandemic flu. We've had Ebola, we had Zika, we now we have COVID, we had saws. One is truly amazing how many really globally impactful emerging infections have occurred just within the bracket of my own career, my 40 year career. It's just extraordinary. Before that. We had a lot of infectious disease, but none of them will really truly newly emerging diseases that had a global impact the way HIV has. So when HIV became recognized, I mean, after they gave it a name and you want to transmission was not and we were there any models that you could follow? I mean, do you think Go back to 980 for that particular flu, but whereas our models, what, what do we do next? You know, there was not a model for HIV because most of the outbreaks, like we add pandemic flu in 1918. We've got another pandemic in 1957 and another pandemic in 1968. They will all explosive infectious diseases where everything happens within the framework of a year or a season. And then it was over. Whereas with HIV, it was insidious. It started off with individual groups of patients. The first group that we just discussed from the MMWR, we thought it was only gay men incorrectly. And then it became clear that people who received blood transfusions, hemophiliacs, injection drug users. We're all vulnerable to HIV. Then when the virus was discovered and we developed a test for HIV, we realized that we were dealing with the tip of the iceberg in people who are actually clinically ill because they were multi, multi fold more people who are infected or not yet clinically ill. And that's what it became clear that we were dealing with a very unusual outbreak where the majority of people afflicted did not even know they were infected. That's very, very different from influenza, where it occurs in a period of three or four or five months. And when you're sick, you know, you're sick. Whereas with HIV, you could go for a few years without knowing your infected. Until finally your immune system would break down and you would get clinically ill. So we were not prepared for that type of an outbreak. This was completely unique to us in infectious disease. And actually there are a lot of layers to all this. I mean, it had a lot of stigma because of populations, some being impacted more than others. And then course the blood transfusions. And then, you know that the actual name of the disease is a lot of things. I think beyond just the medical bar to social and sexual aspects. I think it made it a little bit more complicated. We'll follow those things happening one after. I mean, how did you make it through those dates? Well, as I've described it, it was very unusual because I was trying to do research at the same time as I was myself and two or three of my colleagues at the NIH, we're taking care of literally a ward full of desperately ill young men. And that was not only time-consuming, it was physically and emotionally draining because you spend all day taking care of individuals. He had no drugs. We didn't even know what the etiologic agent was. An almost all of them were dying within a period of six or eight months or a year from the time we saw them. So I refer to that in my lecturing and in my writing as the dark years of my professional career, but also even to my, my entire life. Because when, when you are completely devoted to studying a particular disease, you kind of enter the world of that disease and to become part of it. So it was very, very difficult. But then when we started to get successes, First drugs, and the first combinations that literally were able to give people a return to normal life. That was it, totally transforming experience. It was very frustrating to know that so many people did not quite make it in time. Or the very successful drugs that could essentially get people to live a normal life. And that was the situation that we all know. The Ryan was in because a lot of friends of mine, very close friends were in that category where when we had the explosion of essentially totally transforming drugs in 990, six, ninety seven, ninety eight. When the triple combinations that people who are involved with severe illness before then did not have the benefit of that. It was just one of those unfortunately tragic situations where I know that if you've been, you Thank you for mentioning the dark years crusade was a question I was going to ask because I have read with it. That's a statement that you've made. And that was when Ashley, what you mean by that? Weren't you conserve the face of the aids epidemic? I mean, how, how did, what did you learn about yourself during all those years of the very dark times of the aids epidemic. Well, it was a very interesting and somewhat paradoxical situation because in the very early years during the Reagan administration, with all the positive things about President Reagan, he was not very proactive in using the bully pulpit of the presidency to call attention to what was needed for HIV aids. So being a scientist and a physician who was very public about what we were doing. I became the face of HIV, but the face of the federal government, which was good news and bad news. The bad news was that the activist community, understandably and appropriately, one that a place at the table to have input into the design of clinical trials and into the approach and the support of research for HIV. So in order to gain the attention of the government, they began attacking me, which in many respects was a good thing because I handled it pretty well. And it got me to reach out to the activists and partner with them to see what we could do to get the community involved in the scientific research and regulatory agenda, which was a whole new paradigm of activism having a positive impact on how a disease was addressed by the federal government. So yes, I became the face of HIV. But I think in the long run, it was very helpful even though I was initially branded as the government person who was not sensitive to the needs of the HIV community. But when they found out that I was really on their side and pulling for the things that they will fill and thought. Then I became somewhat of a hero among the aids activists. So, you know, everything that comes around goes around. And that's how it turned out. Well, I mean, that is one of the most important legacies of your career is I think the response that you, you listen to what activists like ACT UP in other organizations were saying. And you're right, that at least from the right the readings that I am done relative to that era that that you were responded to that as it was sort of novel, not many federal person's bad. And it made a big difference. And think and, and, and the partnership of the federal government and the activist. I'm working together in solving the problem, the problem together at the same time. So what I want to talk about now is this idea of being both a scientist and public health servant. I made you've really experience, I mean, you, you have experience being the Public Health Advisor for seven presidents. And I'm sure through all of that, you experience unique personalities and that you had to be adaptive the way that you responded. And it must have been in continuous, maybe it has been recently. Major challenge itself. For you to be the director for 37 years. You apparently have figured out how to work within the system to continue to do your work. Yet, be true to science. And can you explain it all the things that you've heard to be able to do that. I mean, president after praised it, different philosophies after different philosophies. Yeah, I think I can explain it in a little anecdote story. Because when I first advised President Reagan in 1985, I was getting ready to go into the White House. So my first time to visit with the President, I've done that now about a couple of 1000 times since then, but I was like first time and a very wise person who I knew had been in one of the former administrations and was a good friend of mine, an elderly individual. When I asked him if he had any words of wisdom, formal, he told me one of the best things you can do is when you walk into the White House, make sure you tell yourself, this may be the last time that I'm going to be walking into this place because I might have to tell the president something that is an inconvenient truth that he or she does not want to hear. And if you go by that 10, it you will either get kicked out and never be seen again or they will respect you enough because you're telling the truth. Asked back. And that's exactly what I had done on the first time I ever advised President Reagan. And on the multiple, multiple, multiple times that I've done that with Reagan, Bush, Clinton, Bush obama, and now Trump, and now Biden. So it's works. If you tell the truth and the answer to your question is, never compromise your principles. Never compromise your integrity, and never be afraid to tell it like it is. If the people who you're dealing with have any character and integrity, they will accept what you tell them because they'll know it's based not on political ideation because I am a completely a political person which is necessary to survive and, and advise seven presidents. I don't have enough political affiliation. I never have had a political affiliation. And they know that. So they take you for what you are. And so the fact that you're a scientist, there was one exception to that, but I would like that was okay. Hey, what tribe have you had to read through all those several decades? Have did you have to adjust your style? And they, I mean, I know you have to be faithful to science and truth. But I guess based on whoever is the President, that might take a little bit different style. Yeah, well, it was not only different style. The presidency that a President of the United States and their interaction with me really is dictated by what the circumstances of the public health challenges during that presidency. Let me, for example, with Reagan and with George W Bush, it was dominated by HIV AIDS. And then when we have some equilibrium and we reached a point of good drugs and things were stable when we got into the Clinton administration. Then he was, instead of this very tense interaction with the community, it kind of leveled off. And then we had George W Bush. He didn't. One of the most extraordinary things for HIV in ever was to allow me to put together with him the PEPFAR program, which is for me one of the most important things I've ever been involved with, and I have an eternal gratitude to President George W Bush for allowing me to work with him to develop the PEPFAR program. And then when bush left and Obama came in, President Obama had multiple emerging infections that had nothing to do with HIV. And there was Ebola and Zika and there were all the other things you gotta deal with. So would really, the interaction with the President is really dictated by what the circumstances often the health standpoint. I had nothing to do with President Trump for the first three years of and I said, I never even met him. And then along came COVID. And that's when I was in the White House practically every day. I in right now with President Biden was still dominated by the multiple surging waves of COVID. So a lot of it is out of your control and out of the control of the presidency. It's just what is going on from a public health standpoint. Well, I mean, it's it's very admirable that you have been able to do all that during those several decades to be adaptive to whatever the public health situation is, what would you say? What would you consider to be your greatest challenge in your shorter, like day to day operations as the director? While he was probably during the last administration when I had to maintain the level of scientific integrity. At the same time that there were some unusual things going on. Claims of drugs that work when they didn't work. Claims that the outbreak was going away when you knew it wasn't going away. That that was really quite challenging and a bit uncomfortable because I had to do something I never had to do before. Was that was to be publically contradicting something that the President of the United States said that was not easy to do wrong, was it pleasant? But I had to do it if I was going to maintain my integrity in and my scientific principles that guide me. One last question then. Many people will remember your scientific achievements. But sometimes people will remember more about the kind of person they are, the principles, their character, their values they have. What would you hope that if someone looked back to you and add some reflections about your personality and your values and your principles. What would you hope they would say? Well, I hope that they would realize that I'm a person who has a great deal of strong feeling for humanity. And I utilized my profession and my training as a physician and as a scientist. Despite a lot of challenges that we faced over the last 40 years that I've been doing this, that I tried my best to make a contribution to preserve the health and the safety of individual patients as well as the nation as a whole. And that I did a pretty good job of it. So that's what I would hope people. I think a lot of people will think that really when it comes down to it. And before we give you the Ryan White Award will do something quite unique and something very special. I'd like to introduce Matthew Harris, a third-year medical student pursuing a career in infectious disease at DDA University School of Medicine. He will read to you and original poem called wildlife, which will be displayed on the screen, is touching poem was written specifically for this event. Bye, indiana poem pre-work. Matthew Graham. Thank you for the introduction. Dr. Wang by in memory of mine, presented Anthony as Fouchier me. I only ever survive this long, stumbling through the dark, plagues of disease and eight, falling, falling because only appears end of the long way home environment. I love Matthew gram and the NSA Poet Laureate, December 6th, 2021. And recognition of the Indiana University School of Public Health Bloomington. And I will email Yorkers, wisdom and courage of money that we infectious disease student interest group at the immunity Madison. Or they seem Dr. Fouchier, a suspect, and receiving the right eye, my seamlessness or yay for your leadership and for unsigned and et cetera positions. Thank you. Thank you. Math. And as you, Dr. Fouchier, you will receive a black with that original poem on that onto plaque. Ryan was never able to fulfill his dream of tending the IU School public or Indiana University. But however, to endure his memories of what he stood for, it is enters in Indiana University, real Center for aids, STD prevention has created the Ryan White Distinguished Leadership Award. They've been 13 outstanding individuals, including the first recipient, Jeannie White, gender, Dr. Fouchier, the directors of the Indiana University Role Center for aids STD prevention, unanimously believe it is most fitting that you be the recipient of the four teeth Ryan White, Distinguished Leadership Award. So GD, Could you read part of the plaque to Dr. Fouchier? Any appreciation for your numerous outstanding cocktail patients to HIV and aids prevention. If R be an exemplary Mary mare at the standard of excellence and commitment needed to combat HIV AIDS. Thank you. And gt that was presented on December 6th, 2007, Dr. Fouchier, you are a model of what one person can be, an individual or a singular ambition of improving the health of the country and world. Certainly, you will be remembered for your impactful scientific contributions. But to most people, you will be remembered by your character and values and principles you hold. Despite being criticized, discredited, and harassed. We've always put health issues first and put secondary the political aspects you have advance the scientific agenda, even in the face of extreme pressure. Your personal courage, candor, integrity, empathy, and even human. You are visible champion of the importance of research and truth and the right for people to know. In so many ways. You are a national, international hero. Admiration and respect of view is best reflected by this quote from Martin Luther King. The ultimate measure of a person is not how he stands in a moment of comfort or convenience, but where he stands at times of challenges in controversy. Congratulations again for being named the 43 sapiens. The Ryan White Distinguished Leadership Award. There's the plaque and gt, and I hope to come to DC and December to present it to you in person along with the black for the poem. Thank you very much Phil. So I got Patsy. Thank you Jane. Yeah, I want to thank Poet matthew grey, him and the infectious disease student interest group at the Indiana University School of Medicine. So they're wonderful home. They also want to thank you very much Dr. Jaeger and Jeannie. So you're kind introduction. I am really humbled and deeply grateful to receive the Ryan White Distinguished Leadership Award. It is especially touching because today would have been Ryan's 50th birthday, I believe that's right. It is hard to believe how quickly time has passed since I knew him when he was a young boy. The bravery and depth of compassion, ryan display decades ago as a young boy living with HIV, as left a profound imprint that continues to burn bright into Inspire so many of us. Why sincere gratitude to Genie? The Indiana University School of Public Health, Bloomington, and the rural Center for aids, STD prevention. So this wonderful honor, as you know, Ryan's legacy of humanity lives on in the Ryan White HIV AIDS program, which is now 30 years old. It provides HIV medical care and other essential services to low-income people diagnosed with HIV. And more than half of all the people diagnosed in the United States each year benefit. So this life-saving hearse a program. An astonishing number, more than 88% are virally suppressed. Wisely, Ryan recognize that in addition to the health care, overcoming stigma and inequality are critical to defeating HIV AIDS. This perspective is as true today as it was then. Global COVID-19 pandemic has again made it very plain that to end pandemics, who must end the health inequities and recognize this reality is a first step. However, in this regard, we have much work ahead. And so thank you again. So this award in memory of a truly remarkable young man, Brian, why? Who chose selflessness over self-pity. And in doing so, he became a transformative public health figure. An inspiration to me personally and to so many others. And a beloved embodiment of dignity, empathy, and hope. So. Thank you again for this wonderful graduations again, thank you, Dr. Fouchier. Thank you. That concludes the program. After. Excellent. Thank you so much for joining us, Dr. Bellucci and all participants today. That concludes our special evening. Thank you very much. Thanks. See you. Thank you. Well, sir, Take care. Thanks, folks.